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LINKS TO HEARING HEALTH RESOURCE SITES

If you are aware of a resource for the deaf, hearing or balance impaired, or for scientists and clinicians studying the temporal bone and hearing and balance disorders, please let us know and we will add the information to the Registry's page. Click here for contact information.
Name of Organization Description of Site Internet Address
Acoustic Neuroma Association This is the home page of the Acoustic Neuroma Association. ANA is a patient-organized support and information organization for those who face or have undergone acoustic neuroma removal. ANA offers resources to those experiencing cranial nerve deficits. http://anausa.org/
A.G. Bell Alexander Graham Bell Association for the Deaf and Hard of Hearing offers information for adults with hearing loss, parents of hearing impaired children, medical professionals, and educators.  http://www.agbell.org/desktopdefault.aspx
ALDA (Adult Late-Deafened Association) This is the homepage of ALDA.  They are an organization dedicated to people who lose hearing post-lingually. http://www.alda.org
American Academy of Audiology The Academy offers a consumer guide for hearing loss with information about audiograms and purchasing hearing aids.  http://www.audiology.org
The Academy offers consumers a way to search for audiologists in their city and state. http://webportal.audiology.org/Custom/FindAnAudiologist.aspx
American Association of the Deaf-Blind The AADB is a national nonprofit organization of, by and for people with both vision and hearing losses, and those who support them. The organization's mission is to "ensure that all deaf-blind persons achieve their maximum potential through increased independence, productivity, and integration into the community." http://aadb.org

 

American Auditory Society The primary aims of the Society are to increase knowledge and understanding of the ear, hearing and balance; disorders of the ear, hearing and balance, and preventions of these disorders; and habilitation and rehabilitation of individuals with hearing and balance dysfunction. http://www.amauditorysoc.org/about/index.html

 

American Brain Tumor Association The American Brain Tumor Association is a not-for-profit, independent organization. They serve individuals globally and award funds to researchers throughout the United States and Canada. It exists to eliminate brain tumors through research and to meet the needs of brain tumor patients and their families. http://hope.abta.org
American Hearing Aid Associates

Website devoted to people with hearing loss as well as  their family and friends.  They specialize in the diagnosis and treatment of hearing loss.  They have information about Ménière's, different types of hearing loss, and an online self-examination.

http://www.ahaanet.com/default.asp
American Hearing Research Foundation Information about dizziness, balance and hearing. Founded in 1956 by Dr. George E. Shaumbaugh, Jr., The American Hearing Research Foundation serves two vital roles: to fund significant research in hearing and balance disorders, and to help educate the public. http://www.american-hearing.org

 

American Society for Deaf Children Founded in 1967 as a parent-to-parent organization, the American Society for Deaf Children today is a national, independent nonprofit that works to empower parents of deaf and hard of hearing children by advocating for the highest quality services and programs. http://www.deafchildren.org

 

American Speech Language Hearing Association Home page for the ASHA.  They have information on their site regarding child language and hearing resources and new research information. http://www.asha.org/
American Tinnitus Association The non-profit American Tinnitus Association is the nation's foremost organization working to cure tinnitus http://www.ata.org/
Association of Research in Otolaryngology The Association for Research in Otolaryngology is an international association of scientists and physicians dedicated to scientific exploration among all of the disciplines in the field of otolaryngology. Research efforts involve the ear, nose, head, neck and related functions including hearing, balance, speech, taste and smell among others. A wide range of scientific approaches is represented including biochemical, physiological, behavioral, developmental and evolutionary. http://www.aro.org

 

Audiology Awareness The Audiology Awareness Campaign (AAC) was organized by five professional audiology organizations with one main goal in mind. Helping persons with hearing loss. At this site you can take an online "hearing test", read patient friendly brochures on hearing loss and hearing aids, find out what is an Audiologist, post a question on our Question and Answer Board, and even find an Audiologist in your area who can further answer your questions and give you help. Our web page is only one part of the informational process. The AAC is also involved in a nationwide TV, Newspaper, and Magazine advertisement effort to help those with hearing impairment find quality hearing health care.

http://audiologyawareness.com

Balance Centers of America This page contains information about therapy for balance impairment with treatment centers in California, Illinois, Indiana, Nevada and Hawaii.

http://www.balancecentersofamerica.com/

Baylor College of Medicine -
Bobby R. Alford Department of
Otorhinolaryngology and Communicative Sciences
Department of Otorhinolaryngology and Communicative Sciences. Includes information for patients and the scientific community. http://www.bcm.tmc.edu/oto/
Better Hearing Institute This site provides comprehensive information on hearing loss, tinnitus, and hearing aids, as well as a directory of hearing care providers (audiologists, hearing instrument specialists, and otolaryngologists). http://www.betterhearing.org
Body Donor Programs in the U.S. This site provides a listing of whole body donor programs across the United States. http://www.med.ufl.edu/anatbd/usprograms.html
Boys Town National Research Hospital Boys Town National Research Hospital provides nationally-oriented clinical and surgical services. Research programs focus on childhood deafness, visual impairment and communication disorders. http://www.boystownhospital.org

 

Canadian Hard of Hearing Association (CHHA) The Canadian Hard of Hearing Association advocates for hearing issues and solutions, and provides information. The Association is run by and for individuals who are deaf and hard of hearing. http://chha.ca

 

Canadian Hearing Society The Canadian Hearing Society has been serving Deaf, deafened, and hard of hearing people since 1940 by offering workshops in speech reading, communications, and sign language, as well as providing general information on deafness. http://chs.ca

 

Captioned Media Program/National Association of the Deaf Free lending library funded by the U.S. Dept. of Education.  Videos available are "open captioned" no special decoders are needed.  These videos are available to teachers, school personnel, and others who work with people with hearing disabilities. http://www.cfv.org
Center for Healthcare Information "The largest free-access healthcare directory on the web." http://www.cmrg.com
Central Institute for the Deaf Website devoted to people with hearing loss, as well as their family and friends. CID specializes in the diagnosis and treatment of hearing loss. They have information about Ménière's, different types of hearing loss, and an on-line self examination. http://cid.edu

 

Central Institute for the Deaf at Washington University, St. Louis CID scientists joined scientists in the Department of Otolaryngology-Head and Neck Surgery to add to a powerhouse of hearing and deafness research. Washington University faculty members in the Department of Otolaryngology and the Program in Audiology and Communication Sciences conduct research, provide clinical care and operate graduate degree programs in deaf education, audiology and communication sciences as part of CID at Washington University School of Medicine. http://cid.edu/home/CIDatWUSM scientists.htm

 

Ear Institute of Chicago, LLC

The Ear Institute of Chicago, LLC is a medical and surgical practice that devotes itself entirely to the diagnosis and treatment of disorders of the ear, facial nerve and related structures (otology/neurotology and skull base surgery). The Ear Institute of Chicago, LLC is actively engaged in research and teaching through its affiliation with the Northwestern University Medical School. This website is designed to educate and inform our patients, physicians and other health care professionals.

 

Explanation of hearing, hearing loss, cochlear implants.

http://www.chicagoear.com/
Cochlear Implant Awareness Foundation (CIAF) The Cochlear Implant Awareness Foundation is a nonprofit organization that provides information, resources, and support to prospective cochlear implant recipients and their families. Both the organization's founder and her daughter are cochlear implant recipients. http://www.ciafonline.org

 

Cranial Base Center, 
Massachusetts General 
Hospital, Massachusetts
Eye & Ear Infirmary, 
Harvard Medical School

The Purpose of this Center is to provide a complete range of services for the diagnosis, treatment and rehabilitation of patients with cranial base lesions. Patients may be referred for consultation only, care in partnership with referring physician, or complete management.

http://neurosurgery.mgh.harvard.edu/CranialBaseCenter/default.htm

 

 

DB-LINK (The National Consortium on Deaf-Blindness) DB_LINK partners with five organizations--Helen Keller National Center, Hilton/Perkins Program, Teaching Research Institute at Western Oregon University, American Association of the Deaf-Blind, and National Family Association for Deaf-blind to provide current information, research, and best-practices standards for children who are deaf-blind and their families. http://www.dblink.org

 

The Deaf Resource Library The Deaf Resource Library is an online collection of reference material and links intended to educate and inform people about Deaf cultures in Japan and the United States; as well as deaf and hard of hearing related topics. http://www.deaflibrary.org
Deafness/Hard of Hearing Info Page from About the Human Internet A wide range of topics are covered on this website from Cochlear Implants to State Resources.  They have information on publications, hearing associations and research.

http://deafness.about.com/

Deafness Research Foundation The Deafness Research Foundation (DRF) is a national voluntary health organization committed to directing public attention and support for basic as well as clinical research on the causes, treatment, and prevention of deafness and other hearing disabilities. http://www.drf.org
Dr. Rauch's Online Otology Clinic Viewers can click on topics such as Chronic Otitis Media, Otosclerosis, Auto Immune Inner Ear Disease to view a 3-5 minute video presentation.  http://www.meei.harvard.edu/shared/oto/rauch.php
The EAR Foundation The EAR Foundation is a national not-for-profit organization working to educate the public and the medical profession in matters of hearing loss and disease of the ear, and to sponsor basic clinical research into hearing and balance disorders. http://www.earfoundation.org
Ear Surgery  Offers information on various subjects relating to hearing.  It also demonstrates certain surgical procedures with detailed illustrations. http://www.earsurgery.org
ENT Journal ENT Journal links to patient educational information,  ENT Associations, and ENT publications. http://www.entjournal.com/Links.htm
ENT NET  A website generated by the American Academy of Otolaryngology  to offer information to patients about ear, nose and throat diseases. http://www.entnet.org/healthinfo/disclaimer.cfm
ENT Physician Search

Ear, Nose and Throat Physicians around the United States.

http://www.entnet.org/ent_otolaryngologist.cfm
Ear, Nose and Throat- U.S.A. A physician generated website with information for patients.   http://www.entusa.com
Section devoted to the temporal (ear) bone anatomy with actual temporal bone slides and diagrams. http://www.ear-anatomy.com
This website is devoted to the evaluation of occupational hearing loss.  The most common cause of occupational hearing loss is acoustic trauma from loud noise. http://www.occupationalhearingloss.com
Friendly 4 Seniors

Friendly4Seniors.com searches the Internet to find useful sites for Seniors and their loved ones. http://www.friendly4seniors.com

 

Gallaudet University Leading the world in undergraduate and graduate programs for deaf, hard of hearing, and hearing students. http://www.Gallaudet.edu
Hands & Voices Hands & Voices is a parent-driven, parent-professional national nonprofit organization that works to improve educational and social outcomes for children who are deaf or hard of hearing so they can achieve their highest potential. http://www.handsandvoices.org

 

HandSpeaktm A practical sign language dictionary online. http://www.handspeak.com
Harvard Medical School Center for Hereditary Deafness The Harvard Medical School Center for Hereditary Deafness has a mission to bring researchers, clinicians and families together to better understand hereditary hearing loss. http://hearing.harvard.edu/about.htm
HealthWorld Online Online magazine with information about topics such as ear infections and hearing loss. http://www.healthy.net/index.asp
Healthy Hearing This online guide offers information on hearing loss, hearing aids, cochlear implants, tinnitus, and more. http://www.healthyhearing.com
HearingExchange HearingExchange is a supportive community for people with hearing loss, parents of deaf and hard of hearing children, and professionals who work with them. http://www.hearingexchange.com
Hearing Health Magazine HEARING HEALTH is a one-of-a-kind magazine designed for people who experience any degree of hearing loss, tinnitus, or other ear disorder. Professionals, educators, and significant others also find HEARING HEALTH a useful resource as they seek ways to improve communication. From the dangers of loud noise to training hearing dogs to the controversy surrounding sign language vs. oral communication and cochlear implants, this unique publication covers a range of topics important for living with hearing impairment and deafness. http://www.drf.org/hearing_health/index.htm
Hearing Loss Association of America (formerly Self Help for Hard of Hearing People, Inc.) The Hearing Loss Association of America is the nation's largest organization for people with hearing loss. The Hearing Loss Association of America exists to open the world of communication for people with hearing loss through information, education, advocacy and support. http://www.hearingloss.org

 

Hearing Loss Resources
presented by the SayWhatClub
The SayWhatClub is an on-line group of over 200 late-deafened and hard of hearing and other interested folks who provide support and encouragement to each other through e-mail. http://www.saywhatclub.com
Hearing, Speech and Deafness Center HSDC is a nationally unique, fully accredited independent agency offering a broad array of services tailored to help people with a variety of communication problems related to hearing loss and/or speech and language impairments. The Center’s mission is to enrich the lives of all adults and children who experience hearing loss, speech and language impairments, or who are deaf, by providing professional services and technology and by promoting community awareness and accessibility. http://www.hsdc.org
Hear-It Hear-It is an international, non-commercial website providing a wealth of unbiased, general information about hearing loss. http://www.hear-it.org

 

Helen Keller National Center The Helen Keller National Center for Deaf and Blind Youths and Adults is a national rehabilitation program serving youth and adults who are deaf-blind. http://www.hknc.org

 

Hereditary Hearing Loss Homepage Features research into hereditary hearing loss.

http://webh01.ua.ac.be/hhh/

 
House Ear Institute Howard P. House, M.D., founded the Institution in 1946 as a private non-profit hearing research & educational facility. House Ear Institute has led the way in defining the causes of hearing and balance disorders, improving medical/surgical procedures, and prosthetic devices. The Institute's discoveries have helped millions of people receive successful treatments. http://hei.org

 

Inner Ear Balance and Dizziness The Inner Ear Balance and Dizziness web page is for people with inner ear balance and dizziness disorders and those who want to know more about them. http://www.balance-and-dizziness.com/
John Tracy Clinic Founded in 1942, the John Tracy Clinic is a private, nonprofit education center that provides free, parent-centered services worldwide to families of infants and preschool children who are deaf or deaf-blind. The clinic offers parent correspondence courses, parent education programs, and summer sessions. http://www.jtc.org

 

Landau Kleffner Syndrome This page contains information for parents of children with Landau Kleffner Syndrome and lists support groups in the UK and soon the US. Landau Kleffner Syndrome is a rare form of childhood epilepsy which results in a severe language disorder. The cause of the condition is unknown. http://www.friendsoflks.com
League for the Hard of Hearing Private not-for-profit rehabilitation agency for infants, children and adults who are hard of hearing and deaf. It is licensed by the State of New York Department of Health as an out-of-hospital health facility; approved by the State of New York Office of Mental Health, as an out-patient clinic treatment program; accredited by American Speech-Language-Hearing Association (ASHA) and International Association of Counseling Services, Inc.; a member agency of the United Way of New York City and New York State Rehabilitation Association. http://www.lhh.org
Maryland Hearing and Balance Center The Maryland Hearing and Balance Center at the University of Maryland Medical Center provides specialty care for patients with problems related to the ears, facial nerve, and skull base. Its team of doctors and health care professionals is dedicated to high quality patient care as well as advancing the understanding of hearing, balance, and skull based disorders. http://www.umm.edu/otolaryngology/index.html

 

Ménière's Disease
American Academy of Otolaryngology
This page is a copy of an American Academy of Otolaryngology - Head and Neck Surgery Public Service Brochure.

http://www.sinuscarecenter.com/aao/meni_aao.htm

 

Ménière's Disease Information Page This site is maintained as a non-profit public service to provide information and support regarding Ménière's Disease. http://www.menieres.org
Ménière's Disease and Message Board Support Forum Ménière's Forum provides information and a support forum for people who have Ménière's disease or any other Vestibular Disorder.
 
http://www.menieresforum.com
Mount Sinai Medical Center
Department of Otolaryngology
Department of Otolaryngology http://www.mssm.edu/ent/
National Association of the Deaf (NAD) Since 1880, the National Association of the Deaf has been "promoting, protecting, and preserving the rights and quality of life of deaf and hard of hearing individuals in the United States of America." The organization works toward legal, employment, and educational rights, communication access, and awareness of deaf culture and history. http://www.nad.org

 

National Center for Hearing Assessment and Management (NCHAM) Early Hearing and Detection Intervention (EHDI) Established in 1995 at Utah State University, the goal of National Center for Hearing Assessment and Management (NCHAM) is to "assist hospital-based Universal Newborn Hearing Screening and state-based Early Hearing Detection and Intervention (EHDI) programs to ensure that all infants are screened for hearing loss at birth and receive timely and appropriate diagnostic and intervention services." http://www.infanthearing.org

 

National Cued Speech Association The National Cued Speech Association offers information, support, and advocacy for those interested in learning about and using cued speech as a communication alternative. http://www.cuedspeech.org

 

National Funeral Directors Association

 

 

 

 

 

Continuing education audio cassettes for funeral directors and associated professionals addressing temporal bone removal and embalming implications. Topic: Removal of Temporal Bones for Medical Research by Saumil Merchant. http://www.nfda.org/
The National Funeral Directors Association's publication: Temporal Bone Donation and the Funeral Home—The donation of temporal bones imposes some challenges in postmortem planning and preparation by Sumiko Goldbaum, Brian R. Moister, and Saumil N. Merchant

http://www.nfda.org/directorArticle.php?eID=319

NIDCD (National Institute on Deafness and Other Communication Disorders) The NIDCD is the federal government's focal point for biomedical and behavioral research in human communication. The institute supports and conducts research on the normal and disordered processes of hearing, balance, smell, taste, voice, speech and language. The Temporal Bone Registry is a program of the NIDCD. http://www.nidcd.nih.gov
National Organization for Hearing Research Foundation The National Organization for Hearing Research Foundation was established to fund and support research into the causes, preventions, treatments, and cures of hearing loss and deafness. http://www.nohrfoundation.org

 

National Organization for Rare Disorders, Inc. NORD is the only organization of its kind--a unique federation of more than 140 not-for-profit voluntary health organizations serving people with rare disorders and disabilities. Thousands of affected individuals and their families--as well as support groups, health care and human service professionals, and advocates for people with rare disorders and disabilities--rely on NORD's assistance and leadership. NORD is a charity and continues its mission through the kindness and generosity of its our donors. http://www.pcnet.com/~orphan/
New York University Medical Center -
Department of Otolaryngology
Department of Otolaryngology http://www.med.nyu.edu/ENT/
Northwestern University Medical School -
Department of Otolaryngology
Department of Otolaryngology http://www.oto-hns.northwestern.edu/
Office of Special Education -
Hearing impairment resource page
This page is a Special Education Resource from the Curry School of Education at the University of Virginia. It contains resources for the hearing impaired including schools for the deaf. http://teach.virginia.edu/go/cise/
ose/categories/hi.html
Oral Deaf Education - Resource Page This page is a resource for parents of hard of hearing or deaf children.  Deaf or hard of hearing children can learn to speak.  Links to Oral Deaf Education Schools. http://www.oraldeafed.org
Oregon Hearing Research Center & Tinnitus Clinic Website offers information on different methods of treatment for tinnitus. http://www.ohsu.edu/ohrc/index.html
OTOHNS NET This website offers both physician and patient information.  

http://www.otohns.net/clinicalresources/otology.asp

 

Patient education center.  Articles on topics such as hearing loss, tinnitus and dizziness.

http://www.otohns.net/default.asp?id=13077#otoneuro

 

University of Chicago - Department of Otolaryngology Department of Otolaryngology

http://surgery.uchicago.edu/surgical_specialties/

otolaryngology__Head_and_neck_Surgery/index.php

PathServe Autopsy and Tissue Bank PathServe Human Tissue Bank is a tissue supplier for bioresearch and educational institutions. It was established in 1990 by Julie Nasr, a prominent autopsy instructor and business woman in order to better satisfy the needs of Bay Area hospitals using inexpensive and reliable postmortem examinations. Today we've grown into a multi-departmental organization; serving nationwide as a human tissue supplier to biotech and neuropathological research institutions as well as a main training facility of autopsy technicians to private pathologists and local hospitals. http://www.tissuebank.com
ScienceCare

 

Phone: 602-288-0034

ScienceCare Tissue Bank is a tissue supplier for researchers.  It was established in 2003.  It serves as a link between individual donors and medical researchers and educators. ScienceCare is accredited by the American Association of Tissue Banks for the procurement and distribution of non transplantable organs, tissues and the whole body for medical research and education. http://www.sciencecarebio.com/index.htm

 

orders@sciencecare.com 

 

Scientific Learning

 

 

The Fast ForWord Family of Programs™ develop the critical thinking, listening, and reading skills that are necessary for success in the classroom, the workplace and in everyday life. http://www.scilearn.com

 

Shea Center For Ears Hearing & Balance, Inc The Shea Center For Ears Hearing & Balance is dedicated to the memory of John Joseph Shea, Sr., M.D. (1898-1952). His dedication to patients and widespread reputation for honesty, integrity and excellence in otolaryngology form the guiding principles upon which the staff at the new Center will take hearing health care into the next century. http://www.ears.com
University of Iowa Hospitals & Clinics -
Department of Otolaryngology
Department of Otolaryngology

http://www.uihealthcare.com/depts/med/otolaryngology/index.html

University of Minnesota -
Department of Otolaryngology
Department of Otolaryngology

http://www.ent.umn.edu

University of Texas Southwestern Medical Center - Department of Otolaryngology Department of Otolaryngology

http://www8.utsouthwestern.edu/utsw/cda/dept28166/files/45897.html

 

Vestibular Disorders Association A non-profit organization dedicated to serving people with inner ear balance disorders

http://www.vestibular.org

Wake Forest School of Medicine
(Formerly the Bowman Gray School of Medicine) - Department of Otolaryngology
Department of Otolaryngology http://www.wfubmc.edu/ent
Werner Institute Of  Balance Information about vestibular rehabilitation for anyone who has to overcome deficiencies that occur with injury to the inner ear or other parts of the balance system. http://www.nomorevertigo.com/

Click Here to watch the No More Vertigo Video

 
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NIDCD National Temporal Bone, Hearing and Balance Pathology Resource Registry
Massachusetts Eye & Ear Infirmary, 243 Charles Street, Boston, MA 02114-3096
Tel: (800) 822-1327, TTY: (888) 561-3277, Fax: (617) 573-3838
Email: tbregistry@meei.harvard.edu
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Last Update: March 11, 2008


The Registry is supported by Contract No. HHS-N-260-2004-00001-C from the National Institute on Deafness and Other Communication Disorders.