NIDCD National Temporal Bone, Hearing and Balance Pathology Resource Registry

Useful Links

Acoustic Neuroma Association (ANA)
A patient-organized support and information organization for those who face or have undergone acoustic neuroma removal; offering resources to those experiencing cranial nerve deficits.

AG Bell
This organization offers information for adults with hearing loss, parents of hearing impaired children, medical professionals, and educators.

American Academy of Audiology
The Academy offers a consumer guide for hearing loss with information about audiograms and purchasing hearing aids.

American Academy of Otolaryngology—Head and Neck Surgery
The Academy offers consumers a way to search for audiologists in their city and state.

American Association of the Deaf-Blind
A national, non-profit organization, by and for people who experience both vision and hearing losses, and those who support them.

American Auditory Society
Aims to increase knowledge and understanding of the ear, hearing, and balance and related disorders; preventions of these disorders; and habilitation and rehabilitation of individuals with hearing and balance dysfunction.

American Brain Tumor Association
A non-profit, independent organization existing to eliminate brain tumors that serves individuals globally and awards funds to researchers throughout the United States and Canada.

American Hearing Aid Associates
Devoted to people with hearing loss as well as their family and friends, they specialize in the diagnosis and treatment of hearing loss. They have information about Ménière’s, different types of hearing loss, and an online self-examination.

American Hearing Research Foundation

This foundation serves two vital roles: to fund significant research in hearing and balance disorders and to help educate the public.

American Society for Deaf Children
This national, independent non-profit works to empower parents of deaf and hard of hearing children by advocating for the highest quality services and programs.

American Speech-Language-Hearing Association
Here, find information and resources regarding speech and language disorders, hearing loss, and other related disorders.

American Tinnitus Association
This non-profit is the nation’s foremost organization working to cure tinnitus.

Association of Research in Otolaryngology
This international association of scientists and physicians is dedicated to scientific exploration among all of the disciplines in the field of otolaryngology. Research efforts involve the ear, nose, head, neck, and related functions including hearing, balance, speech, taste, and smell, among others.

Audiology Awareness Campaign  
Here, you can take online hearing tests, read patient friendly brochures on hearing loss and hearing aids, learn about audiology, post questions on their forum, and find an audiologist in your area.

Better Hearing Institute
Here, you can find comprehensive information on hearing loss, tinnitus, and hearing aids, as well as a directory of hearing care providers (audiologists, hearing instrument specialists, and otolaryngologists).

Body Donor Programs in the U.S.
This site provides a listing of whole body donor programs across the United States.

Boys Town National Research Hospital
This hospital provides nationally oriented clinical and surgical services with research programs focusing on childhood deafness, visual impairment, and communication disorders.

Canadian Hard of Hearing Association (CHHA)
Run by and for individuals who are deaf and hard of hearing, this organization advocates for hearing issues and solutions.

Canadian Hearing Society
Offers workshops in speech reading, communication, and sign language, as well as provides general information on deafness.

Center for Hearing and Communication
Provides unsurpassed hearing health care for infants, children, and adults with hearing loss and auditory challenges.

Central Institute for the Deaf
A healthcare directory on the web maintained by Washington University in St. Louis.

Cochlear Implant Awareness Foundation (CIAF)
A non-profit organization aiming to raise awareness about how cochlear implants restore sound for the hearing impaired, providing cochlear implant equipment to qualified applicants.

Cranial Base Center
Provides a complete range of services for the diagnosis, treatment, and rehabilitation of patients with cranial base lesions.

Described and Captioned Media Program 
Promotes and provides equal access to communication and learning for students who are blind, visually impaired, deaf, hard of hearing, or deaf-blind. 

Ear Institute of Chicago
Website devoted to people with hearing loss, as well as their family and friends.

Ear Surgery Information Center
Offers information on various subjects relating to hearing.

ENT Journal

Links to patient educational information, ENT associations, and ENT publications.

Ear, Nose, and Throat—USA
A physician-generated website with information for patients.

Hands & Voices
A parent-driven, national non-profit organization working to improve educational and social outcomes for children who are deaf or hard of hearing so they can achieve their highest potential.

HandSpeak
A practical sign language dictionary online.

Harvard Medical School Center for Hereditary Deafness

Brings researchers, clinicians, and families together to better understand hereditary hearing loss.

Healthy.net
Online resource with information about topics such as ear infections and hearing loss.

Healthy Hearing
This online guide offers information on hearing loss, hearing aids, cochlear implants, tinnitus, and more.

Hearing Health Foundation

Supportive community for people with hearing loss, parents of deaf and hard of hearing children, and professionals who work with them.

Hearing Health Magazine

Online magazine designed for people who experience any degree of hearing loss, tinnitus, or other ear disorders.

Hearing Loss Association of America

Exists to open up the world of communication for people with hearing loss through information, education, advocacy, and support.

Hearing, Speech and Deaf Center
Aims to enrich the lives of all adults and children who experience hearing loss, speech and language impairments, or who are deaf, by providing professional services and technology and by promoting community awareness and accessibility.

Hear-It
This is an international, non-commercial website providing a wealth of unbiased, general information about hearing loss.

Helen Keller National Center

A national rehabilitation program serving youth and adults who are deaf-blind.

Hereditary Hearing Loss Homepage

Features research into hereditary hearing loss.

House Ear Institute
Helps define the causes of hearing and balance disorders, and improve medical/surgical procedures and prosthetic devices.

John Tracy Clinic
This private, non-profit education center provides free, parent-centered services worldwide to families of infants and preschool children who are deaf or deaf-blind.

Maryland Hearing and Balance Center

Provides specialty care for patients with problems related to the ears, facial nerve, and skull base.

Ménière’s Disease: American Academy of Otolaryngology
Information about Ménière’s Disease.

Ménière’s Disease: Information Page
This site is maintained as a non-profit public service to provide information and support regarding Ménière’s Disease.

National Association of the Deaf (NAD)
Promotes, protects, and preserves the rights and quality of life of deaf and hard of hearing individuals in the United States.

National Center for Hearing Assessment and Management (NCHAM)
Assists hospital-based Universal Newborn Hearing Screening and state-based Early Hearing Detection and Intervention (EHDI) programs to ensure that all infants are screened for hearing loss at birth and receive timely and appropriate diagnostic and intervention services.

National Center on Deaf-Blindness
Works to improve the quality of life for children who are deaf-blind and their families.

National Cued Speech Association
Offers information, support, and advocacy for those interested in learning about and using cued speech as a communication alternative.

National Funeral Directors Association
Continuing education audiocassettes for funeral directors and associated professionals addressing temporal bone removal and embalming implications.

NIDCD (National Institute on Deafness and Other Communication Disorders)

This institute is the federal government’s focal point for biomedical and behavioral research in human communication, and supports and conducts research on the normal and disordered processes of hearing, balance, smell, taste, voice, speech, and language. The Temporal Bone Registry is a program of the NIDCD.

National Organization for Hearing Research Foundation
Funds and supports research into the causes, preventions, treatments, and cures of hearing loss and deafness.

National Organization for Rare Disorders
A patient advocacy collaboration of more than 140 not-for-profit voluntary health organizations serving people with rare disorders and disabilities.

OHSU Ear, Nose & Throat
Website offering information on different methods of treatment for tinnitus.

PathServe Autopsy and Tissue Bank
This is a tissue supplier for bioresearch and educational institutions.

Peak and Balance Centers of America
Treats conditions ranging from sports and orthopedic disorders and hearing dysfunction, to highly specialized testing and treatment of dizziness and balance disorders for professional athletes, astronauts, armed forces pilots, and divers.

SayWhatClub
This is an online group of more than 200 late-deafened and hard of hearing and other interested folks who provide support and encouragement to each other through email.

Science Care
Accredited by the American Association of Tissue Banks for the procurement and distribution of non-transplantable organs, tissues, and the whole body for medical research and education.

Scientific Learning
The Fast ForWord Family of Programs™ develop the critical thinking, listening, and reading skills that are necessary for success in the classroom, the workplace, and in everyday life. 

Supporting Deaf and Hard of Hearing Students
Today’s wide range of tools, devices, and systems can help students who are deaf or hard of hearing thrive in an educational setting. This guide focuses on those resources, tech tools, and expert tips that students of all ages can use achieve academic success.

The EAR Foundation
Working to educate the public and the medical profession in matters of hearing loss and disease of the ear and to sponsor basic clinical research into hearing and balance disorders.

Verywell
A wide range of topics are covered on this website, providing information on publications, hearing associations, and research.

Vestibular Disorders Association
A non-profit organization dedicated to serving people with inner ear balance disorders.

NIDCD