NIDCD National Temporal Bone, Hearing and Balance Pathology Resource Registry

About The Registry

The National Temporal Bone, Hearing and Balance Pathology Resource Registry (the Registry) is a non-profit organization that promotes research on hearing and balance disorders. Established in 1992 by the National Institute on Deafness and Other Communication Disorders (NIDCD) of the National Institutes of Health (NIH), the Registry serves as a resource for the public and the scientific community about the research being done on the pathology of the human auditory and vestibular systems.

The Registry was created to continue, and expand on, the work of the former National Temporal Bone Banks Program, which was formed in 1960 by the Hearing Health Foundation, formerly known as the Deafness Research Foundation, and the American Academy of Ophthalmology and Otolaryngology to encourage temporal done donation.

Today, the Registry is the home to more than 7,700 temporal bone cases, which scientists from around the globe analyze in order to find new treatments and cures for problems associated with hearing, balance, and the facial nerve.

The Registry provides the following resources and services:

  • Dissemination of public information on temporal bone donation and research
  • Enrollment of temporal bone donors
  • Publication of The Registry, a semi-annual newsletter for researchers and physicians
  • Conservation of existing human temporal bone collections
  • Professional educational activities for researchers and physicians
  • 24-hour nationwide network which collects temporal bones